Supporting frontline staff in frontotemporal degeneration research - Takeaways - MDSpire
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Enhancing the Role of Clinical Research Coordinators in Frontotemporal Degeneration Studies

  • By

  • Shana G. Dodge

  • Danelle J. Carter

  • Dahlia Kamel

  • Angela Lunde

  • Quinn Hlava

  • Kevin Nelson

  • Penny A. Dacks

  • September 11, 2026

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  • 1

    Clinical Research Coordinators (CRCs) are essential in frontotemporal degeneration (FTD) studies, directly influencing participant experiences.

  • 2

    A survey of 37 CRCs revealed that 62% felt inadequately prepared in critical training areas like genetics and symptom management.

  • 3

    Retention of CRCs is linked to competitive compensation and clear career advancement opportunities.

  • 4

    The Association for Frontotemporal Degeneration is developing modular training to enhance CRC competency in FTD research.

  • 5

    High CRC turnover is a challenge, often due to the role being viewed as a temporary position rather than a long-term career.

Original Source(s)

Supporting frontline staff in frontotemporal degeneration research

  • by Shana G. Dodge, Danelle J. Carter, Dahlia Kamel, Angela Lunde, Quinn Hlava, Kevin Nelson, Penny A. Dacks

  • September 11, 2026

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