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1
Disease registries systematically collect data on patients, supporting clinical care, public health policy, and real-world research.
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2
Rheumatology registries like CORRONA and BSRBR provide insights beyond randomized controlled trials, monitoring treatment effectiveness and safety.
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3
Rheumatry, established in Iran in 2016, is the country's first national registry for rheumatic diseases, aiming to collect longitudinal clinical data.
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Rheumatry enrolls patients from 26 hospitals, utilizing secure, role-based access to a web-based platform for data collection and management.
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The registry's design includes ethical considerations, ensuring participant consent and compliance with national data protection regulations.
