Redefining Fontan Care: The Socio-Economic Impact of SVHD on Families - Takeaways - MDSpire
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Redefining Fontan Care: The Socio-Economic Impact of SVHD on Families

Survey results reveal the long-term socio-economic and psychological impacts of single ventricle congenital heart disease (SVHD) on families. See how cardiologists Deepti Bhat, MD, and Naim Duran, MD, contributors to this research, are using findings to transform Fontan Clinic care at Phoenix Children’s.

  • By

  • August 12, 2026

  • 6 min

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  • 1

    Families of single ventricle congenital heart disease patients face significant social, economic, and psychological challenges.

  • 2

    Over half of surveyed parents reported job changes or quitting work due to their child's diagnosis.

  • 3

    The Fontan Clinic at Phoenix Children’s focuses on proactive care to improve quality of life for patients and families.

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    The clinic's caregiver survey revealed major impacts on finances, travel, and mental health among families.

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    Findings emphasize the need for better support, education, and resources for families at the time of diagnosis.

Original Source(s)

Redefining Fontan Care: The Socio-Economic Impact of SVHD on Families

  • by

  • August 12, 2026

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Correction: Measuring Atrioventricular Valve Regurgitation Using 4D Flow Cardiovascular Magnetic Resonance Post-Fontan