Associations with the quality of life of adult family members or partners (informal carers) of people with leukaemia: results from a cross-sectional online global survey

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The study involved 511 informal caregivers of leukaemia patients, with 59% supporting those with acute leukaemia and 41% with chronic leukaemia.
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The median Family Reported Outcome Measure (FROM-16) score was 14, with 38% of respondents scoring above the critical threshold of 17.
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Caregiving hours were positively associated with higher FROM-16 scores, indicating poorer quality of life for informal caregivers.
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The acute leukaemia group had a median FROM-16 score of 16, while the chronic group had a median score of 8, indicating differing impacts on QoL.
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The study highlights the need for tailored support for informal caregivers, reflecting the varying burdens faced by those caring for acute versus chronic leukaemia patients.

Frontiers In Hematology

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