The Missing Step in Pediatric Lupus Care - Takeaways - MDSpire

The Missing Step in Pediatric Lupus Care

Survey data show gaps between rheumatologists’ beliefs and clinical practice in screening and neuropsychological evaluation for childhood-onset systemic lupus erythematosus

  • By

  • Henry Thomas

  • March 17, 2026

  • 2 min

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  • 1

    Cognitive dysfunction affects 30% to 60% of children with childhood-onset systemic lupus erythematosus (SLE).

  • 2

    Despite recognizing the importance of cognitive screening, only 61% of clinicians regularly inquire about cognitive concerns.

  • 3

    Only 8% of surveyed clinicians reported using comprehensive neuropsychological evaluations routinely.

  • 4

    Barriers to cognitive assessment include time constraints, uncertainty in using tools, and limited access to neuropsychological services.

  • 5

    Strategies to improve cognitive assessment in pediatric lupus care include developing streamlined tools and establishing consensus recommendations.

Original Source(s)

The Missing Step in Pediatric Lupus Care

  • by Henry Thomas

  • March 17, 2026

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