Toward Health Care Structure–Informed Measures of Transition Success for Young Adults With Sickle Cell Disease - Takeaways - MDSpire

Toward Health Care Structure–Informed Measures of Transition Success for Young Adults With Sickle Cell Disease

  • By

  • Lydia H. Pecker

  • Alexander K. Glaros

  • Monica L. Hulbert

  • July 13, 2026

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  • 1

    Over 90% of infants with sickle cell disease (SCD) born after 1983 survive to adulthood due to improved pediatric care interventions.

  • 2

    Young adults with SCD face increased mortality risks as they transition from pediatric to adult care, often without adequate support.

  • 3

    The COMETS trial found that community health worker support and self-management apps improved health-related quality of life for young adults with SCD.

  • 4

    Transition readiness metrics for young adults with SCD lack evidence supporting their ability to predict successful adult care outcomes.

  • 5

    Social support is crucial for young adults with SCD, influencing their engagement in care and potentially impacting transition success.

Original Source(s)

Toward Health Care Structure–Informed Measures of Transition Success for Young Adults With Sickle Cell Disease

  • by Lydia H. Pecker, Alexander K. Glaros, Monica L. Hulbert

  • July 13, 2026

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