Fear of Disease Progression Among Parents of Children With Juvenile Idiopathic Arthritis or Type 1 Diabetes

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This cross-sectional study included 124 parents of youth aged 2 to 18 years with JIA (n = 57) or T1DM (n = 67).
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Parents completed online questionnaires about fear of disease progression, their own psychosocial outcomes, and their child’s pain and psychosocial outcomes.
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Higher parental fear of disease progression was associated with less favorable psychosocial outcomes for parents and youth, based on parent reports.
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After covariate adjustment, parental fear of disease progression explained an additional 1.6% of variance in parent-reported youth health-related quality of life.
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Secondary analyses found elevated fear of disease progression in 76% of parents.

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