Preventing cardiovascular complications in adults with congenital heart disease: predictors and outcomes of the levels of follow-up care - Takeaways - MDSpire

Preventing cardiovascular complications in adults with congenital heart disease: predictors and outcomes of the levels of follow-up care

  • By

  • Fouke Ombelet

  • Ruben Willems

  • Steffen Fieuws

  • Eva Goossens

  • Katya De Groote

  • Werner Budts

  • Stéphane Moniotte

  • Michèle de Hosson

  • Liesbet Van Bulck

  • Julie De Backer

  • Lieven Annemans

  • Ariane Marelli

  • Philip Moons

  • BELCODAC consortium

  • Lieven Annemans

  • Werner Budts

  • Julie De Backer

  • Katya De Groote

  • Michèle de Hosson

  • Daniel De Wolf

  • Marc Gewillig

  • Eva Goossens

  • Chris Leyman

  • Stéphane Moniotte

  • Philip Moons

  • Fouke Ombelet

  • Agnes Pasquet

  • Thierry Sluysmans

  • Liesbet Van Bulck

  • Alexander Van De Bruaene

  • Ruben Willems

  • December 16, 2025

  • 0 min

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  • 1

    Only 19% of patient-years for adults with congenital heart disease were in specialized care, with 53% receiving non-cardiac follow-up.

  • 2

    Among patients with complex defects, only 52% received specialized follow-up, indicating gaps in care.

  • 3

    Regular cardiac follow-up, especially in specialized centers, significantly reduces risks of heart failure and myocardial ischemia.

  • 4

    Predictors for higher levels of follow-up included male sex, genetic syndrome, and absence of prior interventions.

  • 5

    Both specialized and non-specialized ACHD follow-up were associated with better clinical outcomes, emphasizing the need for consistent monitoring.

Original Source(s)

Preventing cardiovascular complications in adults with congenital heart disease: predictors and outcomes of the levels of follow-up care

  • by Fouke Ombelet, Ruben Willems, Steffen Fieuws, Eva Goossens, Katya De Groote, Werner Budts, Stéphane Moniotte, Michèle de Hosson, Liesbet Van Bulck, Julie De Backer, Lieven Annemans, Ariane Marelli, Philip Moons, BELCODAC consortium, Lieven Annemans, Werner Budts, Julie De Backer, Katya De Groote, Michèle de Hosson, Daniel De Wolf, Marc Gewillig, Eva Goossens, Chris Leyman, Stéphane Moniotte, Philip Moons, Fouke Ombelet, Agnes Pasquet, Thierry Sluysmans, Liesbet Van Bulck, Alexander Van De Bruaene, Ruben Willems

  • December 16, 2025

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