Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium - Takeaways - MDSpire
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Centering Equity in European Dementia Research: A Collaborative Perspective from the PANEUCARE Consortium

  • By

  • Maria Isabel Cardona

  • Clarissa Giebel

  • Anthony Scerri

  • Anthea Innes

  • Ninoslav Mimica

  • Osman Kučuk

  • T. Rune Nielsen

  • Jūratė Macijauskienė

  • Birute Bartkevičiūtė

  • Carolien Smits

  • Carmel Geoghegan

  • Soraya Moradi-Bachiller

  • Anne Marie Rokstad

  • Iva Holmerova

  • Elżbieta Trypka

  • Ágnes Egervári

  • Raluca Sfetcu

  • Marija Taneska

  • Péter Hegedűs

  • Iryna Shevchenko

  • Svetlana Iloski

  • Thanos Chatzikostopoulos

  • Jochen René Thyrian

  • August 31, 2026

Share

  • 1

    The PANEUCARE consortium aims to create equitable dementia research by integrating professional expertise with the views of people living with dementia and caregivers.

  • 2

    Regional disparities in dementia care across Europe complicate research participation, funding, and care practices, particularly affecting Southern and Eastern European countries.

  • 3

    Key challenges identified include workforce shortages, delayed diagnosis, fragmented care pathways, caregiver burden, and limited representation in research.

  • 4

    Innovations such as community-based services and digital tools demonstrate resilience and potential for learning across different regions in dementia care.

  • 5

    The EQUITABLE framework provides actionable guidance for designing inclusive and context-sensitive dementia research throughout Europe.

Original Source(s)

Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium

  • by Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu, Marija Taneska, Péter Hegedűs, Iryna Shevchenko, Svetlana Iloski, Thanos Chatzikostopoulos, Jochen René Thyrian

  • August 31, 2026

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