Health-related quality of life in Chinese children with immune thrombocytopaenia: a multicentre study - Takeaways - MDSpire

Health-related quality of life in Chinese children with immune thrombocytopaenia: a multicentre study

  • By

  • Shuxian Huang

  • Min Chen

  • Hui Zhang

  • Yongzhi Zheng

  • Sihan Huang

  • Zhiyuan Chen

  • Jinhong Luo

  • Liyun Xiao

  • Jinhua Chu

  • Biyun Guo

  • Yan Dai

  • Yuantao Huang

  • Shuhong Shen

  • Haixia Zhou

  • Kaizhi Weng

  • April 1, 2026

  • 0 min

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  • 1

    This study evaluated health-related quality of life (HRQoL) in Chinese children with newly diagnosed immune thrombocytopaenia using the Kids’ ITP Tools scale.

  • 2

    A total of 88 child self-reports and 215 parent proxy-reports were collected from nine tertiary hospitals between 2023 and 2025.

  • 3

    Significant parent-child discordance in HRQoL scores was found, with parents reporting poorer HRQoL by a mean difference of 20.06 points at diagnosis.

  • 4

    The study demonstrated excellent scale reliability, with Cronbach’s alpha values of 0.944 for parents and 0.910 for children.

  • 5

    Findings indicate the need for culturally informed family-centered psychosocial interventions and support for parents of children with ITP.

Original Source(s)

Health-related quality of life in Chinese children with immune thrombocytopaenia: a multicentre study

  • by Shuxian Huang, Min Chen, Hui Zhang, Yongzhi Zheng, Sihan Huang, Zhiyuan Chen, Jinhong Luo, Liyun Xiao, Jinhua Chu, Biyun Guo, Yan Dai, Yuantao Huang, Shuhong Shen, Haixia Zhou, Kaizhi Weng

  • April 1, 2026

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