A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development - Takeaways - MDSpire

Exploring Patient Insights and Preferences in Lupus Care to Inform the Development of Treatment Guidelines

  • By

  • Shivani Garg

  • Izzy Hartel

  • Lisa R. Sammaritano

  • Anca Askanase

  • Bonnie L. Bermas

  • Maria Dall'Era

  • Alí Duarte-García

  • Victoria P. Werth

  • Brad Rovin

  • Reem A. Mustafa

  • Amy S. Turner

  • Bené Williams

  • Brian L. Ung

  • Hiya Bhavsar

  • Monique C. Gore-Massy

  • Nahirannette Pulido

  • Natacha Guerrero

  • Natalie M. Smith

  • Wambui Machua

  • Linda T. Hiraki

  • Mary Beth Son

  • July 1, 2026

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  • 1

    The paper emphasizes the importance of patient experiences and preferences in developing lupus treatment guidelines.

  • 2

    Three key themes identified include treatment and monitoring, clinical communication, and improving transparency.

  • 3

    The American College of Rheumatology has prioritized patient involvement in guideline development since 2015.

  • 4

    Two Patient Panels were convened to gather diverse patient insights for the 2024 and 2025 ACR guidelines.

  • 5

    The study utilized qualitative content analysis to capture patient perspectives on lupus management.

Original Source(s)

A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development

  • by Shivani Garg, Izzy Hartel, Lisa R. Sammaritano, Anca Askanase, Bonnie L. Bermas, Maria Dall'Era, Alí Duarte-García, Victoria P. Werth, Brad Rovin, Reem A. Mustafa, Amy S. Turner, Bené Williams, Brian L. Ung, Hiya Bhavsar, Monique C. Gore-Massy, Nahirannette Pulido, Natacha Guerrero, Natalie M. Smith, Wambui Machua, Linda T. Hiraki, Mary Beth Son

  • July 1, 2026

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