Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity - Takeaways - MDSpire

Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity

  • By

  • Shun-Wei Chuang

  • Jainn-Jim Lin

  • Shuh-Jen Sheu

  • Cheng-Pei Lin

  • June 11, 2026

  • 0 min

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  • 1

    Children with medical complexity (CMC) represent a growing pediatric population with multiple chronic conditions and high healthcare utilization.

  • 2

    Parents of CMC face emotionally demanding life-sustaining treatment decisions amid prognostic uncertainty and evolving caregiving experiences.

  • 3

    In Taiwan, life-sustaining treatment decisions for children are primarily made by parental surrogates under existing legal frameworks.

  • 4

    This qualitative study utilized Heideggerian hermeneutic phenomenology to explore how parental caregiving experiences inform LST decision-making.

  • 5

    Thirteen parents participated in interviews, providing insights into their caregiving routines and the impact on clinical decision-making.

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