Adverse Characterizations of Sickle Cell Disease Patients in Electronic Health Records - Takeaways - MDSpire

Adverse Characterizations of Sickle Cell Disease Patients in Electronic Health Records

  • By

  • Austin Wesevich

  • Alexandria Vangelatos

  • Michael Sun

  • Elizabeth L. Tung

  • Monica E. Peek

  • April 13, 2026

  • 0 min

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  • 1

    Clinician biases based on race, chronic disease, and opioid use negatively impact care for patients with sickle cell disease (SCD).

  • 2

    Patients with SCD, predominantly Black, face compounded biases that affect pain management and treatment decisions in healthcare settings.

  • 3

    Negative language in electronic health records (EHR) can lead to less aggressive pain management for patients with SCD compared to those described neutrally.

  • 4

    A study found that patients with SCD reported higher discrimination rates attributed to their disease than to their race, highlighting unique biases.

  • 5

    The study utilized natural language processing to analyze clinician notes, revealing the presence of negative descriptors for patients with SCD.

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