Strategies for Managing Transition Readiness and the Role of Social Support in Youth with Sickle Cell Disease

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Sickle cell disease affects approximately 100,000 people in the US, primarily impacting individuals of African descent.
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The transition from pediatric to adult care is crucial for young adults with sickle cell disease to improve health outcomes.
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Barriers to effective transitions include negative perceptions of adult care and socioeconomic factors such as racial bias and financial instability.
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Positive coping strategies and strong social support are hypothesized to enhance transition readiness in young adults with sickle cell disease.
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The study utilizes data from the COMETS trial to analyze the relationship between coping strategies and transition readiness in young adults.

Jama Network Open

by Apoorva S. Iyengar, Tanisha Belton, Jack Chen, Tisheya Ward, Olivia Teng, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Biree Andemariam, Omar Niss, Lori E. Crosby, Lisa Schwartz, Lamia Barakat, Kim Smith-Whitley, Sophia Jan, Caren Steinway
July 13, 2026

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