Case Report: First description of an intracranial “NET” in ROHHAD syndrome; time to rename to the ROHHAD-NeCT syndrome? - Top-Institutions - MDSpire

Case Report: First description of an intracranial “NET” in ROHHAD syndrome; time to rename to the ROHHAD-NeCT syndrome?

  • By

  • Nathalie J. Doelman-Oldenburger

  • Antoinette Y. N. Schouten-van Meeteren

  • Mariette E. G. Kranendonk

  • Kim Boshuisen

  • Michiel A. G. E. Bannier

  • Hanneke M. van Santen

  • May 29, 2026

  • 0 min

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Top Institutions in Oncology

Brief introduction explaining scope and methodology.

  • #1

    Ann & Robert H. Lurie Children’s Hospital of Chicago
    Ann & Robert H. Lurie Children’s Hospital of Chicago

    Chicago, Illinois

    Key Differentiators

    • Neuroendocrinology
    • Pediatrics

  • #2

    Children’s Hospital of Philadelphia
    Children’s Hospital of Philadelphia

    Philadelphia, Pennsylvania

    Key Differentiators

    • Neuroendocrinology
    • Pediatrics

Original Source(s)

Case Report: First description of an intracranial “NET” in ROHHAD syndrome; time to rename to the ROHHAD-NeCT syndrome?

  • by Nathalie J. Doelman-Oldenburger, Antoinette Y. N. Schouten-van Meeteren, Mariette E. G. Kranendonk, Kim Boshuisen, Michiel A. G. E. Bannier, Hanneke M. van Santen

  • May 29, 2026

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